The current and the upcoming (Part 1)

By Jay

My Lord… the issue with not blogging for a week is that I don't know where to start telling you what I need to tell you.

Let me start by saying that Austin has been doing really well for the most part. He hasn't had such a good day today, although it started out great. He has been taking major steps towards getting some of his strength back. He's been sitting up a lot better, and that alone helps with so many things. He has also been scooting around when giving the chance, and it seems like physically, he has accelerated more over the last week than for months before, it seems. Today was the first day in a while where he had some concrete heart issues. It started out with palpitations, which he can describe rather well by now, over dizziness, shortness of breath, and so on. But that was only for this afternoon, and he hasn't needed any medications to "fix" it yet. It just hasn't been a great day. Otherwise, he has been feeling great, doing great in therapy, and being much happier than he has been.

We had a great weekend at home. Lee had promised Cameron to take her to see the new Chipmunks movie, and he spontaneously decided to take Austin and Amy along. They had an amazing time there, from what I heard. I didn't get to go, because I wasn't feeling well, but it was great just to hear the stories when they got back! I was nervous about Austin going into "public" like that, but all my concerns were for nothing. I heard he got the giggles over the chipmunks, and he had quite a few comments to offer. ;-)

The guys had a football afternoon at our house on Sunday, and they said they were "warming up for superbowl Sunday." When was this planned at our house??? Well, it was. And it's going to happen! God be with me ;-)

Alright, dear readers, I thought I could write a blog post, but I'm not feeling well at all. My back is hurting, and I'm feeling dizzy for some reason, so for the remainder of this post, I will paste some Facebook status updates of the past few days in here, just so you know of some of the things that came up. I will get to other details when I can. I'm sorry…

 

Jan 19^th:

I had my first PT session for my back this morning. I left Austin with Amy and explained to him where I was going. Fortunately, he knows very well what that means. He said "Bye, see you later" when I left. I'm so stoked he reacted like that! When I came back, we exchanged PT stories. :-) This reminds me of "normal" life! – Jay

 

Jan 19^th:

Jordan is here, spending time with Austin. He is letting him listen to some "new" music, and Austin is into it 100% (likes it a LOT!, keeps saying "turn it up!"). Jordan says they're rockin, and Austin confirms "yea, rockin." (practicing the rocknroll hand sign, Jordan appears to be a good teacher). They are too funny! I'm so thankful for his friends who still come see him regularly and make him smile like this! :) - J.

Comment: Just as I posted this, Austin's friend D. comes in. I quote: "Oh, I see I'm coming at the right time. Let's get this party started." Oh my, I think I might go take my old self to the family room with my book and leave these boys alone for a while ;-) - J.

 

Jan 20^th:

Dr. B. to Austin: Austin, would you like to outside to talk with me today?

Austin: Ya, I *think* I wanna go to the beach. Can you take me and Mom? You think, ya?

Dr. B.: I think we probably won't do that today, but maybe you guys can go when you go home this weekend? You'll be a lot closer to the beach. How about that?

Austin: Yea, Mom, you think? DO you think?

(Thank you, son...)

Me: yes, I think we could talk to Lee and Amy and if the weather hold up, we could probably do that.

Austin: that's good think!

( I think he might have a new favorite word) ;-)

 

Jan 20^th:

I listened to Jesus Culture's "Revelation song" this morning while getting ready, and just now (after coming back from PT) I caught Austin going "holy holy holy"... it wasn't loud, but he was singing it! In tune, mind you! I turned around and looked at him, and he stopped. I asked if he was singing, and he said "uhm I don't know." Yes he was... he tried ;-) - J.

 

Jan 23^rd:

Doctors in Boston are scientists. They experiment. They are thinking of possible "experimental" options for Austin's heart. Drugs are one thing, surgery is another... I'm overwhelmed. Explanation coming up sometime soon. I can't even fathom it yet... - J. (>> I WILL give you more details on this soon!)